Name
| Purpose was to Measure/Evaluate
| Domains
| Total # of Items
| Methods for Evaluating/Scoring Participation
| Population(s) Evaluated with Assessment (Studies in Scoping Review)
|
Assessments Developed with the Primary Purpose of Measuring Participation
|
ACSm [40, 41]
| Activity participation of adults in instrumental, leisure, and social activities.
| 4 categories: instrumental, low-physical-demand leisure, high-physical-demand leisure, and social activities
| 89
| ACS was designed as a semi-structured interview but use in included studies was a modified checklist version.
Categorize items as: never done prior to transplant/diagnosis; do now (as often as before transplant/diagnosis); do less or differently than before transplant/diagnosis; not done since transplant/diagnosis; or new activity since transplant/diagnosis.
| Breast cancer survivors [42] & various cancer diagnoses [34]
|
AACS [30, 43]
(Now AYAPS)
| Participation and activities
| 8 domains: self-care, sedentary leisure, vigorous leisure, education, work, chores, social interaction, and community access and mobility.
| 94
| Semi-structured interview; asked “Do you participate in this activity?” If yes, provide level of assistance needed, if any. If not, provide personal, family, or environmental reason why.
| Childhood cancer survivors with various diagnoses [30]
|
LIFE-H [44]
| Quality of social participation
| 12 categories of life habits: nutrition, fitness, personal care, communication, housing, mobility, responsibilities, interpersonal relationships, community life, education, employment, & recreation
| 240 (69 item short-form)
| Asked about accomplishment (degree of difficulty, types of assistance required) and level of satisfaction
| Breast cancer [45]
|
LIFE-H (children) [46]
| Social participation of children with disabilities from 5-13 years of age
| 11 categories: all in Life-H for adults except employment
| 197 (64 item short-form)
| Level of difficulty, type of assistance required; level of satisfaction
| Childhood craniopharyngioma [32]
|
IPA [47]
| Person-perceived handicaps, which authors state is participation according to the ICIDH-2
| 8 subscales: self-care and appearance, mobility, leisure, social relationships, work, education, family role, and financial independence
| 41
| Rate items from excellent (1) to very poor (5). Most items asked about the possibility of doing activities the way an individual wished. Other items asked about frequency, ability, respect, contribution to activities, and contact with others.
| Cancer survivors in Turkey [48]
|
ICPAS [49]
| Participation of children in Iranian context
| 8 sub-categories: ADL, IADL, play, leisure, social participation, work, education, and sleep/rest.
| 71
| Child and parent-report assessments. Frequency of activities, with whom the activity was done, how enjoyable it is for the child to do the activity, and how much the parent is satisfied (parent-report version only).
| Children with various types of cancer undergoing chemotherapy [31]
|
MAPA [50]
| Degree of meaning through participation in activities
| N/A
| 28
| Frequency of participation (in the last few months) and degree of personal meaningfulness experienced with each activity (0= not at all meaningful to 4= extremely meaningful).
| Various cancer diagnoses [51]
|
PActS [52]
| What older adults feel they should be and could be doing to understand participation from a social perspective
| 7 activity categories: creative activities, spiritual activities, getting around town, communicating with others, doing physical exercise, keeping up with traditional media, and doing service activities
| 14
| For each activity, asked “How much do you believe that a person of your age and diagnosis should be…” (1= very little to 5= quite a lot) and “How much confidence do you have…” (1= very little to 5= quite a lot)
| Various cancer diagnoses [51, 53]
|
Assessments with Domain(s) Specific to Participation
|
Lymph-ICF [54]
| Impairment in function, activity limitations, and participation restrictions
| 5 domains. Impairments in Function: physical & mental. Activity Limitations & Participation Restrictions: household, mobility, and life and social activities.
| 29
| Scored on visual analog scale from 0 (very well) to 100 (not at all). Asked how well person is able to perform or participate in various activities.
| Breast cancer with arm lymphedema [54]
|
PIPP [55]
| Impact and distress of health conditions from the individuals’ perspective
| 5 subscales: self-care, mobility, participation, relationships, psychological well-being.
| 23
| 6-point scale; asked about the amount of impact current health problems had on function (no impact to extreme impact) and how much distress has been caused by the impact of their health problem on function (no distress to extreme distress)
| Breast cancer [56] & brain tumor survivors [57]
|
PROMIS [58]
| Global health focusing on physical, mental, and social components
| Communicative participation item bank & ability to participate in social roles. Also has items about satisfaction with participation, but not yet used with cancer.
| Variable.
Profile: 29; CPIB: 46; short form: 10; CAT varies
| CPIB: rate how much their condition interferes with participation in a range of daily speech communication activities using Likert scale.
Profile & short form: rate ability to participate on Likert scale (never to always)
| Head and neck cancer [59], early-stage breast cancer [60], breast cancer [61], & various cancer types [62]
|
WHODAS 2.0 [63]
| General functioning and disability in major life domains
| 6 major life domains: cognition, mobility, self-care, getting along, life activities, and participation in society.
| 36 (also has a 12-item short form)
| Asked about level of difficulty in activities over the last 30 days or how much problem an individual had (participation domain)
| Head and neck cancer survivors [64] & breast cancer [65]
|
Global Function and Physical Function Assessments
|
DASH [66]
| Symptoms and functional status at the level of disability; emphasis on physical function
| Concepts of symptoms and functional status (3 dimensions: physical, social, psychological)
| 78 + 5 optional items
| Scored on Likert scales with a recall period of 1 week. Items were framed to reflect capacity and performance of activities.
| Breast cancer [67]
|
PASE [68, 69]
| Age-specific physical activity questionnaire
| N/A
| 10
| Items are weighted. Items weights are multiplied by the amount of time spent in each activity (hours per day over a 7-day period) and summed for an overall score.
| Community-dwelling Mexican-American elders with various cancer diagnoses [70]
|
RNL [71, 72]
| Global function status
| Two subscales: daily functioning and perception of self.
| 11
| Self or interviewer-administered. Scored on visual analog scale. 1= minimal integration, 10= complete reintegration
| Extremity soft tissue sarcoma [73, 74] & primary bone tumor of lower extremity [75]
|
WSAS [76]
| Functional impairment
| N/A
| 5
| 0 (no impairment) to 8 (very severe impairment) Likert scale scoring. Asks about impairments in work, home management, social leisure activities, private leisure activities, and relationships.
| Breast cancer survivors [77]
|
Other Assessments
|
CIQ [78]
| Reduced handicap; community integration
| Home integration, social integration, and productive activities subscales
| 15
| Asks who usually performs activities in the home, frequency of activities, or with whom an individual performs activities.
| Digestive tract cancer [79] & brain tumor [80]
|
Social Activity Log [81]
| Frequency and diversity of social activities outside of daily responsibilities.
| N/A
| 17
| Asks how many days in the past 7 days or month an individual participated in certain social activities.
| Long-term cancer survivors who received hematopoietic stem cell transplantation [81]
|