Ethics Approval and Consent to Participate
This study was approved by the Baycrest Research Ethics Board (REB 22-02). All participants providing online informed consent to participate.
Consent for Publication
Not applicable.
Availability of Data and Materials
The data that support the findings of this study are not publicly available due to their containing information that could compromise the privacy of research participants but are available from the corresponding author upon reasonable request.
Competing Interests
The authors declare that they have no competing interests.
Funding
This study was conducted as part of a mini-internship held by DD, which was supported by the Fonds de Recherché Société et Culture Québec. The Canadian Consortium on Neurodegeneration in Aging (CCNA) is supported by a grant from the Canadian Institutes of Health Research (CNA-163902) with funding from several partners. The funders had no role in the conceptualization, design, data collection, analysis, decision to publish, or preparation of the manuscript.
Author Contributions
DD contributed to the conceptualization and methodology of the study, conducted the focus group interview, conducted all quantitative analyses, curated the data, and wrote the manuscript. MYS contributed to the qualitative methodology, led the qualitative analysis, and wrote the qualitative methods and results section. RB contributed to the qualitative analysis. II contributed to the conceptualization of the study approach. NDA contributed to the conceptualization and methodology of the study, and supervised DD in conducting the study. All authors read and approved the final manuscript.
Acknowledgements
We would like to thank all members of the Brain Health PRO Citizen Advisory Group, as well as all chapter authors who completed the study survey. We would also like to thank Mariam Sidrak for transcribing the focus group interview.
The CCNA CAN-THUMBS UP Study Group members are as follows. Co-Principal Investigators: Howard Chertkow, Sylvie Belleville, Howard H. Feldman, Manuel Montero-Odasso, Haakon Nygaard. Steering Committee members: Nicole Anderson, Sarah Banks, Samir Das, A. Carol Evans, Guylaine Ferland, Joyla A. Furlano, Scott Hofer, Inbal Itzhak, Diane Jacobs, Pamela Jarrett, Andrew Lim, Chris McGibbon, Karen Messer, Carolyn Revta, Julie Robillard, Eric E. Smith, Mark Speechley, Jennifer Walker. Other Site Principal Investigators: Michael Borrie, Kenneth Rockwood. CTU Study Operations Team: Paul Brewster, Andrew Centen, Marc Cuesta, Senny Chan, January Durant, Tatiana Herold, Nellie Kamkar, Jody-Lynn Lupo, Yanina Sarquis-Adamson, Penelope Slack, Amal Trigui, Shahnaz Winer. BHPro Content Contributors: Fatim Ajwani, Anas Alrohimi, Nicole Anderson, Geneviève Arsenault-Lapierre, Gabrielle Aubin, Sylvie Belleville, Jennifer Bethell, Louis Bherer, Maude Bouchard, Mark I. Boulos, Jacqueline Burt, Asif Javed Butt, Richard Camicioli, Jennifer Campos, Julie Carrier, Alison Chasteen, Howard Chertkow, Rachel A. Crockett, Marc Cuesta, Danielle D’Amico, Véronique Daneault, Thanh Dang-Vu, Alex Desautels, Caroline Desrosiers, Shirley Dumassais, Emily Dwosh, Gillian Einstein, Margaret Fahnestock, Ryan Stanley Falck, Howard H. Feldman, Guylaine Ferland, Alexandra Fiocco, Christine Gagnon, Jean-François Gagnon, Liisa Galea, Aravind Ganesh, Nicole Gervais, Brigitte Gilbert, Nadia Gosselin, Catherine-Alexandra Grégoire, Tatiana Harold, Stephanie Huang, Catherine Hughes, Inbal Itzhak, Raed Joundi, Heather Keller, Elizaveta Klekovkina, Kim Lasnier-Le Quang, Danielle Laurin, Teresa Liu-Ambrose, Marie-Céline Lorenzini, Dominique Lorrain, Kaljani Mahalingam, Sarantia Samantha Maltezos, Brooklyn Mankasingh, Roger Marple, Susan Marzolini, Samira Mehrabi, Paul Mick, Laura Middleton, Tatiyana Mollayeva, Manuel Montero-Odasso, Annabelle Moore, Aline Moussard, Reanne Mundadan, Kelly Murphy, Leigh-Anne M. Noltie, Haakon Nygaard, JB Orange, Emilie Parolin, Natalie Phillips, Kathy Pichora-Fuller, Lori Piquette, Jason Plaks, Ron Postuma, Avery Pratt, Maria Natasha Rajah, Helli Raptis, Kayla Regan, Anne Julien-Rocheleau, Marie Y. Savundranayagam, Penelope Slack, Eric E. Smith, Mark Speechley, Kylie Sullivan, Munira Sultana, Fatima Tangkhpanya, Talar Tcherkezian, Anne-Julie Tessier, Lynn Valeyry Verty, Amanda Wagner, Walter Wittich, Stephanie Yamin, Anthonio Zadra. LORIS (Longitudinal Online Research and Imaging System) Team: Alan Evans, Samir Das, Rida Abou-Haider, Rolando Acosta, Camille Beaudoin, Charlie Henri-Bellamare, Jessica Callegaro, Milad Heshmati, Zia Mohades, Pierre Pac Soo. Intervention Selection Team: Serge Gauthier, Howard H. Feldman, Barry Greenberg, Nathan Herrmann, Krista Lanctot, Joanne McLaurin, Haakon Nygaard, Paul Territo, Donald Weaver, Cheryl Wellington. Other Collaborators: Danielle Alcock, Quincy Almeida, Sarah Best, Korbin Blue, Isabella Celotto, Lauren Cole, Roger Dixon, Hiroko Dodge, Caroline Duchaine, Nada Elhayek, Thalia Field, Jason Haassenstab, Josée Haché, Andrew Hamilton, Robin Hsiung, Lauren Moniz, Hanin Omar, Chris Pauley, Bryn Robinson, Ève Samson, Jenna Sands, Andrew Sexton, Sheetal Shajan, Sachie Sharma, Mariam Sidrak, Carol Thomas, Julia Truemner, Linda Yetman, Guangyong Zou. Citizen Advisors: François Boutin, Yves Boutot, Lise Daigle, Nita Goldband, Elaine Harris, Janet Finkelstein, Kateri Marchand, Lesley Miller, Lloyd Schneider. Service Providers: Katherine Siminovitch and the Genomics lab at Mount Sinai Hospital, Larissa McKetton and Cogniciti, Solutions Brainiak, Leadhouse.