In total, 21 qualitative sessions (5 mabaraza and 16 FGDs) were conducted in 11 distinct geographic regions in western Kenya. A total of 205 individuals (113 men and 92 women) participated in the mabaraza, while 162 individuals (57 men and 105 women) participated in the FGDs. Participants expressed interest in participating in MF/GMV programs, but cited several key challenges. Specifically, participants described stigma of chronic disease, earned skepticism of the health system, and socioeconomic fragility as major barriers to MF and GMVs for NCDs.
Stigma of Chronic Disease
Participants noted that, specific to NCDs, there was the potential for stigma and being considered a distinct ‘other,’ characterized by undesirable status or negative stereotypes. For example, some participants described patients with hypertension as lacking motivation to improve or get better. With respect to group-based MF or GMV, there was concern that membership in the group would lead to being labeled as “sick” and potentially “inferior.”
Maybe the disadvantage can come in the form of stigma where outsiders can christen the group the title 'people with pressure,' the group would be known by such a title.
Conversely, some participants expressed optimism that participation in MF or GMV could increase a sense of “belonging,” acceptance, and social cohesion, which could counter the potential for negative stigma.
There is also stigma reduction when they are in groups, someone feels that they are not alone with this condition.
Skepticism of the Health System
Skepticism of the health system was described regarding both the overall quality of care provided, as well as trust in clinical providers. Much of this skepticism was grounded in participants having had previous negative experiences with the health system and clinicians. Participants reported experiencing a lack of respect, verbal abuse, and not getting adequate or comprehensive services.
There was a time I was taken there it's like I saw the devil with my naked eyes! The kind of verbal abuse you get there! And also beating! You will be very surprised ... until I wondered and decided if this was a hospital facility really.
The problem affecting the community, most people are afraid of going to hospital, the way of approach, the way the doctor communicates, the way he starts, let alone serving you, the way he enters and welcomes you contributes for a person to fear the doctor.
There were some notable differences in previous experiences in the public vs. private sector, but neither sector was free from criticism or concern. For instance, participants reported that in the private sector, doctors’ actions are felt to be driven by money and commercial interests, and they might not have patients’ best interests at heart. In contrast, public-sector health providers who are paid a salary are not incentivized to provide services for the purposes of making more money. These providers were described as being “serious” and “more professional.” However, participants also reported the opposite experience, where private-sector providers were seen as providing higher quality care because they are incentivized to treat patients better in order to increase their income, in contrast to public doctors who are not necessarily incentivized to provide quality care in this way. Private sector health facilities were also viewed as being more efficient and clean, but more expensive than the public sector, which was described as being less expensive but of poor quality.
I am not paid according to the patients I serve, if I treat just one or two I will still get my salary.
Some like private [facilities] because of the fast services. When you reach there it does not take time even though it is a bit expensive but your time will be shorter.
GMV, in particular, and MF were felt to have the potential to lead to increased clinician engagement and accountability. Given that a group of patients would be together for a GMV, participants felt that the clinician would be more responsive, more respectful, and more accountable.
I also support a group, is very important because it will make the doctor to work harder, unlike one by one.
In addition, it was felt that MF and GMV would increase both social and instrumental support with respect to access to care. Specifically, the group-based format could serve as an avenue for advocacy and for increasing the confidence to advocate on behalf of oneself and other group members.
When they are together and they teach each other they also motivate themselves, and the groups will help them if there are other needs. They can get money in the groups […] or maybe there is a certain drug missing and they can get to work with the doctor and tells them it is this amount so they can go as a group and bargain for the cost to go down.
Socio-Economic Fragility
Study participants described a nearly all-encompassing sense of socioeconomic fragility that adversely impacted the entire care cascade, from being screened to seeking care to affording medications to completing follow-up visits. For example, lack of access to medicines due to cost was considered a major barrier to experiencing positive health outcomes.
When asked, ‘Why didn’t you come early?’ They say, ‘I was trying to look for money.’
In addition, poor health and unplanned illness were felt to further exacerbate an individual’s and family’s economic strain due to the cost of medical care, as well as lost wages.
Diseases don't tell when they come. It can be even at night. Now at night, where will you go to look for money—nowhere. Your work is to wait till morning for you to go and borrow.
That time when you are sick, the time you go to the hospital it means, like if you have the jobs that you do, you will not progress, so when you see you are just at the hospital, your income has stopped because you will not be working.
Socio-economic fragility was felt to worsen the impact of previously described stigma and health system skepticism. Participants reported that challenges with health care access due to affordability would adversely affect both real and perceived quality of care received by patients. In a negatively reinforcing cycle, the poorer quality of care would exacerbate health system skepticism, leading to lower healthcare utilization, delayed care-seeking, and lower adherence to medical advice, resulting in even worse health outcomes.
The combination of GMV and MF were felt to hold promise for addressing this socio-economic fragility. MF was felt to directly increase liquidity and purchasing capacity, and indirectly to improve overall income-earning potential. In addition, GMV was felt to potentially increase social support and thereby increase motivation and capacity for economic improvement.
Group is good because when the money gets to the table we are happy even though you don’t own [it] all but we can divide equally and use them for hospital expenses.
When you are together, you will find that your colleague is better off and you give yourself hope. You now get energized. Now, another time you come together, you may find that another colleague has changed a bit and improved. As time goes by, you will find that every member in the group becomes strong.