The search in the databases yielded 2,918 results. After removing duplicates, 1,736 results were screened by their titles and abstracts. Out of these, the full texts of 39 results were sought for full-text screening. However, two articles could not be accessed despite contacting their corresponding authors. Therefore, the full texts of 37 results were reviewed, of which 28 papers were selected for data extraction and analysis. The review procedure and reasons for exclusion after full-text screening are summarized in the PRISMA flow diagram (Fig. 2).
Figure 2: PRISMA flow diagram
Study characteristics
The characteristics of the studies included are provided in Table 3, and the distribution of included studies by country is shown in Fig. 3. Fourteen studies used a qualitative approach, nine used a quantitative approach, and five used a mixed methods approach. Also, twenty-two studies used a cross-sectional design, three were ethnographies, one used a descriptive design, and two of the studies did not report the study design used. Fifteen studies used one or more non-probability sampling methods (purposive, convenience, snowballing, total), three used probability sampling (multistage), and ten did not report a sampling method. Furthermore, the sample sizes ranged from 15 to 706 participants. Sixteen studies included some form of analysis (thematic, content, framework), eleven used descriptive and/or inferential statistics, and one did not report any data analysis approach. One study each reported on anxiety disorder and stress disorder, two reported on substance use disorders, three each reported on depression and bipolar disorder, eight reported on Schizophrenia, and eighteen studies were on mental illnesses in general (Table 4). The participant groups included mental health service users, their caregivers, mental and general health professionals, traditional and spiritual healers, religious and traditional leaders, health administrators, policymakers, academics, civil society organizations, and the general public. The various pre-defined themes and subthemes derived from the literature are shown in Table 5.
Table 3
Characteristics of included studies
Author
|
Objective
|
Method
|
Study design
|
Sampling method
|
Sampling size
|
Data collection method
|
Data analysis
|
Badu et al.(8)
|
To explore mental health professional’s views on the evidence-based therapeutic process in psychiatric facilities in Ghana.
|
Qualitative
|
Cross-sectional
|
Purposive
|
30
|
Semi-structured interviews, surveys, and a review of the literature
|
Thematic analysis
|
Ofori-Atta et al.(39)
|
To conduct a situation analysis of the status of mental health care in Ghana and to propose options for scaling up the provision of mental health care
|
Qualitative
|
Cross-sectional
|
Purposive
|
122
|
Semi-structured interviews and focus group discussions
|
Framework analysis
|
Elugbadebo et al.(27)
|
To determine the pattern of clinic attendance among older patients attending outpatient mental health services at the Geriatric Centre of the University College Hospital (UCH), Ibadan, Nigeria, and examine the reasons for drop out and partial non-attendance.
|
Mixed methods
|
Cross-sectional
|
Not reported
|
201
|
Review of case records, key informant interviews, semi-structured questionnaire
|
Descriptive statistics and content analysis
|
Mosaku and Wallymahmed(35)
|
To provide information on attitudes of PHC workers towards the mentally ill and determine factors that affect such attitudes
|
Qualitative
|
Cross-sectional
|
Not reported
|
100
|
Questionnaire
|
Descriptive and inferential statistics
|
Samba(16)
|
To assess the availability of essential Psychotropic medications at PHC facilities and identify facilitators/barriers to their availability at primary care level.
|
Quantitative
|
Descriptive
|
Total
|
106
|
Questionnaire
|
Descriptive statistics
|
Barrow and Faerden(17)
|
To describe local concepts, experiences and knowledge about mental illness and the implications of such beliefs and attitudes for access to mental health services
|
Qualitative
|
Cross-sectional
|
Convenience and purposive
|
15 for in-depth interviews
|
Focus group discussions (FGDs) and in-depth interviews
|
Thematic analysis
|
Adjorlolo and Aziato(25)
|
To investigate factors hampering the provision of mental health services by nurses and midwives to childbearing women to assist in the prioritization and distribution of limited mental health resources
|
Qualitative
|
Cross-sectional
|
Convenience
|
309
|
Questionnaire
|
Descriptive and inferential statistics
|
Jack-Ide and Uys(33)
|
Explored the barriers to utilization of mental health services by caregivers/clients accessing services at the Rumuigbo Hospital, the aim being to identify key elements in an effort to increase access and improved service utilization
|
Qualitative
|
Cross-sectional
|
Purposive
|
20
|
In-depth interviews
|
Thematic analysis
|
Anyebe et al.(26)
|
To identify and explore the real and perceived barriers to the provision of community mental health service in three selected states in northern Nigeria.
|
Mixed methods
|
Cross-sectional
|
Purposive
|
204
|
Questionnaire and in-depth interviews
|
Descriptive and thematic analysis
|
Jack-Ide et al.(18)
|
To explore the experiences of living with and caring for persons with serious mental health problems within the context of the mental health policy environment in Port Harcourt, Rivers State, Nigeria.
|
Qualitative
|
Cross-sectional
|
Purposive
|
20
|
In-depth interviews
|
Framework analysis
|
Gwaikolo et al.(28)
|
To identify potential barriers to development and uptake of mental health services for an mhGAP-based primary care program in rural Liberia.
|
Mixed methods
|
Not reported
|
Purposive
|
71
|
Focus group discussions and key informant interviews
|
Descriptive statistics and framework analysis
|
Nonye et al.(19)
|
To determine the health-seeking behavior of mentally ill patients in Enugu, Nigeria.
|
Quantitative
|
Cross-sectional
|
Not reported
|
397
|
Questionnaire
|
Descriptive and inferential statistics
|
Read(40)
|
To provide a qualitative perspective on the limitations of antipsychotic medication as experienced by people with mental illness and their families in rural communities in and around Kintampo, Ghana.
|
Qualitative
|
Ethnography
|
Not reported
|
114
|
Key informant interviews and focus group discussions
|
Not reported
|
Ikwuka et al.(31)
|
To establish the relative weight, significance, and determinants of ideological versus instrumental barriers for behavioral policy interventions.
|
Mixed methods
|
Cross-sectional
|
Multistage (random and convenience)
|
706
|
Questionnaire
|
Descriptive statistics, inferential statistics, and content analysis
|
Agyapong et al.(13)
|
To examine the perceptions of psychiatrists and health policy directors about the policy to expand mental health care delivery in Ghana through a system of task-shifting from psychiatrists to community mental health workers (CMHWs)
|
Mixed methods
|
Cross-sectional
|
Total
|
40 (quantitative), 9 (qualitative)
|
Questionnaire and key informant interviews
|
Descriptive statistics and thematic analysis
|
Pigeon-Gagné et al.(7)
|
To explore the perceptions of care systems and barriers to help-seeking that may be encountered by people with mental disorders in urban areas of Burkina Faso
|
Qualitative
|
Ethnography
|
Not reported
|
Not reported (69 stakeholders in FGDs, 25 individual interviews)
|
Individual interviews, focus group discussions, and participant observation
|
Thematic analysis
|
Nelson and Abikoye(9)
|
To investigate barriers to the utilization of drug abuse treatment by female street sex workers in Nigeria.
|
Qualitative
|
Not reported
|
Snowball
|
27
|
In-depth interviews
|
Thematic analysis
|
Kisa et al.(6)
|
To assess the different pathways persons with severe mental disorders and epilepsy take when accessing care and identify the barriers to accessing care that patients face.
|
Qualitative
|
Cross-sectional
|
Purposive
|
Not reported (22 KIIs, 6 FGDs (consisting of 5 to 8 participants each))
|
Focus group discussions, and key informant interviews
|
Framework analysis
|
Ikwuka et al.(32)
|
To explore the preferred pathways to care for mental illness and dynamics of pathways choices in a non-clinical cross-section of the south-eastern Nigerian population
|
Quantitative
|
Cross-sectional
|
Multistage (random and convenience)
|
706
|
Questionnaire
|
Descriptive and inferential statistics
|
Ibrahim et al.(30)
|
To describe the distribution of first pathway contacts for psychiatric care by individuals with mental disorders attending the outpatient unit of a large public psychiatry facility and assess the possible link between socio-demographic factors and patients’ pathways before they sought care at the Pantang Psychiatric Hospital in the Greater Accra Region of Ghana.
|
Quantitative
|
Cross-sectional
|
Purposive
|
107
|
Questionnaire
|
Descriptive and inferential statistics
|
Odinka et al.(37)
|
To assess the relationship between the positive and negative symptoms of schizophrenia, help-seeking
behavior and duration of untreated psychosis (DUP).
|
Quantitative
|
Cross-sectional
|
Not reported
|
360
|
Questionnaire and interviews
|
Descriptive and inferential statistics
|
Cohen et al.(11)
|
To augment our understanding of how SHGs may contribute to the clinical, social, and economic well-being of service users and their families
|
Qualitative
|
Ethnography
|
Not reported
|
Not reported (18 SHGs, 5 local NGOs, and others)
|
Observations, discussions, and conversations
|
Thematic analysis
|
Lasebikan et al.(34)
|
To determine the influence of social network on the pathway to formal mental health service use among psychotic patients in a general hospital in a major city in South Western Nigeria.
|
Quantitative
|
Cross-sectional
|
Not reported
|
652
|
Questionnaire
|
Descriptive and inferential statistics
|
Fitts et al.(20)
|
To identify challenges and opportunities for mental health system strengthening within each health system building block in Sierra Leone
|
Qualitative
|
Cross-sectional
|
Convenience
|
43
|
In-depth interviews
|
Thematic analysis
|
Hopwood et al.(29)
|
To investigate the barriers and facilitators to mental health service provision at service and management levels within Sierra Leone’s district nurse-led mental health units (MHUs).
|
Qualitative
|
Cross-sectional
|
Purposive
|
13
|
Key informant interviews and focus group discussions
|
Thematic analysis
|
Adeosun et al.(24)
|
To assess the pathways to mental health care in patients with schizophrenia, at their first contact with a mental health service in Lagos, southwestern Nigeria and determine the association between the pathways to care and certain clinical and sociodemographic characteristics of the patients
|
Quantitative
|
Cross-sectional
|
Not reported
|
138
|
Questionnaire and interviews
|
Descriptive and inferential statistics
|
Nartey et al.(36)
|
To explore factors influencing treatment pathways to mental health services among consumers in Ghana.
|
Quantitative
|
Cross-sectional
|
Multistage (cluster and systematic)
|
542
|
Questionnaire
|
Descriptive and inferential statistics
|
Odinka et al.(38)
|
To determine the socio-demographic profile of patients with schizophrenia assessing care at a tertiary psychiatric centre, their first points of treatment, and the association of these factors with treatment delay
|
Quantitative
|
Cross-sectional
|
Not reported
|
360
|
Questionnaire and interviews
|
Descriptive and inferential statistics
|
Table 3: Characteristics of included studies
Figure 3: Distribution of included studies by country
Table 5
Pre-defined themes presented with subthemes derived from the literature
Patient-level factors
|
Primary healthcare facility-level factors
|
Other factors
|
• Perceptions of care
o Perceived causes of mental illness
o Knowledge of mental health services
o Confidence and expectations
• Care-seeking behaviour
o Social support
o Nature and severity of symptoms
o Fear of negative consequences
• Healthcare reaching
o Travel distance
o Transportation costs
• Healthcare payment
o Treatment costs
o Family support
o Viability of alternative
• Healthcare engagement
o Perceived symptomatic improvement
o Treatment side effects
o Treatment privacy
o Family support
o Experience of services
o Self-help groups
|
• Approachability
o Access to information
o Awareness creation
• Acceptability
o Attitudes of health workers
o Experience of services
• Availability and accommodation
o Geographic distribution
o Waiting times and processes
o Resource capacity
• Affordability
o Treatment costs
o Opportunity costs
o Shortage of funds
• Appropriateness
o Staff adequacy
o Staff skill capacity
o Working conditions
o Supervision, guidance, and regulation
o Adequacy of medications and resources
o Stakeholder collaboration
|
• Social norms
o Stigmatization
o Social condemnation
o Maltreatment, discrimination and isolation
• Cultural beliefs
o Conceptualization of mental illness
o Perceived causes
o Perceived efficacy
• Traditions
o Customary approach
• Socioeconomic status
o Employment status
o Educational status
|
Patient-level factors
Perceptions of care
Ten papers talked about perceptions of care (5,8,9,18,19,26–30). In West Africa, perceptions about the nature, causes, and appropriate treatment of mental illnesses influence access to primary care. The tendency for people to attribute mental illnesses to spiritual causes (9,28,30) and to conceptualize mental illnesses as those characterized by overt disruptions in behaviour results in delays in seeking healthcare (5,9). Insufficient knowledge of mental health and available services also hinders access (18,26,29). However, familiarity with the services available serves as a facilitator to accessing primary care (29). Furthermore, a lack of confidence in the efficacy of treatment and the perception that mental illnesses are untreatable, serve as barriers (8,18,19).
Care-seeking behaviour
Six papers reported on care-seeking behaviour (8,28,30–33). Seeking primary care for mental illnesses is influenced by social support, the nature and severity of symptoms, and the fear of negative consequences. The decision to seek treatment is seen as the responsibility of the family (30). Consequently, contact with family and friends could serve as a barrier or enabler to access depending on the support system’s decision (32). Also, people with less clear symptoms are less likely to seek primary care; they usually prefer alternative medicine (28,33). For persons with substance use disorder, barriers to access include fear of police arrest, partner disapproval, and lack of trust in health workers (8).
Healthcare reaching
Four papers talked about health-reaching (5,17,29,34). The two influencing factors here are travel distances and transportation costs. Unfortunately, most service users must travel long distances to access mental health care (35). However, people who live close to facilities do not face this barrier (29). A closely related barrier is the high transportation cost to primary care facilities (6,18,42). One study in Liberia reports that bicycle parking fees increase this cost burden at care centers (5).
Healthcare payment
Eight studies had information on healthcare payment (5,8,9,17,29,31,35,36). The subthemes derived from the literature include financial constraints, the viability of alternatives, and family support. Service users are financially constrained and unable to afford services (8,17,29,31,35,36). This is compounded by the expectation that the treatment is lifelong, making it economically unfeasible. However, where hospital treatment is free or alternative medicine is more costly, service users resort to formal mental health care (5). Furthermore, payment for mental services is usually the responsibility of family and social networks. If they face financial difficulties, their mentally ill relative may not be able to receive care (9,36).
Healthcare engagement
Eight papers talked about healthcare engagement (9,10,12,17,18,28,29,37). The ability of service users to engage mental health services is influenced by symptomatic relief, unpleasant side effects, previous experiences of primary care, treatment privacy, family support, and self-help groups. When service users experience relief of symptoms, they do not see the reason to continue treatment (37). Also, some service users commonly complain of unpleasant side effects of antipsychotic drugs which make them weak and unable to work (29). Furthermore, patients and caregivers who have had previous undesirable experiences at mental health care facilities are discouraged from continuing care (9). Additionally, caregivers need assurance of privacy to feel free to discuss their relative’s mental health issues with professionals (28). As is the case for earlier phases of the help-seeking journey, family support greatly influences the ability to engage available services (9,29). A notable facilitator of access is the presence of self-help groups reported in a study in Ghana. These groups improve treatment adherence (10).
Primary healthcare facility-level factors
Approachability
Six studies reported on the approachability of services (8–10,28,33,35). The approachability of mental health services depends on the dissemination of information on the location of facilities and awareness creation by health workers about the availability of such services. People with higher access to this information are more likely to seek help for their condition (28), while a lack of it hinders access (8,35). On the other hand, educational campaigns and awareness creation programmes such as “mad pride marches” (38) and self-help groups (10) are enablers of mental health care access.
Acceptability
Five papers talked about the acceptability of care (5,8,10,39,40). Attitudes of health workers and experiences of formal mental health services influence access to primary care. Studies report that negative attitudes of health workers include stigmatizing and passing derogatory comments, calling clients undesirable names, and despising them (5,8). However, a study in Sierra Leone (39) reveals that health worker passion drives access to mental health care. Moreover, service users who have had positive experiences in the hands of these health workers are encouraged to seek help when needed (10).
Availability and accommodation
Thirteen papers talked about availability and accommodation (5,17,19,26–28,30,31,35–37,39,41). Our review found that geographic location, waiting times and processes, and resource capacity of health facilities affect access to mental health care. Mental health facilities are sparsely distributed and mostly confined to urban areas (17,26,30,35). The available facilities therefore serve large catchment areas, making them inaccessible to those who live far off (5,31,39,42). Moreover, service users and caregivers complain of long waiting times and complex procedures at the primary care facilities, discouraging them from seeking care (35,37). Besides, these facilities are bedeviled with resource challenges such as intermittent power supply and inadequate infrastructure (19,27).
Affordability
Seven papers discussed affordability (8,15,17,19,30,35,38). In West Africa, treatment costs, opportunity costs, and availability of facility funds influence the affordability of mental health care. The high cost of treatment hinders people from accessing mental health care (15,19,30). One study in Sierra Leone reported that sometimes, service providers assist with payments out of their pocket (19). Also, health facilities sometimes spend most of their funds on patients’ basic needs, leaving almost nothing for their treatment (38). In addition, service users and caregivers tend to lose time, money, and effort they feel they could have spent on profit-making activities. This discourages them from seeking formal healthcare (8,17,35).
Appropriateness
Thirteen papers reported data on the appropriateness of care (5,8,12,15,19,27–29,35,37–39,42). The subthemes include staff adequacy; staff skill capacity; adequacy of medications and resources; working conditions; supervision, guidance, and regulation; and stakeholder collaboration. In addition to the lack of facilities that provide mental health care, there are not enough mental health professionals (5,27,35,37). In countries like the Gambia, this is worsened by frequent strike actions by health professionals (15). Moreover, some studies report that the available mental health professionals lack sufficient training which is a major barrier to care (38,42). To mitigate these issues, basic mental health training for primary health care workers in the Gambia and task-shifting in some areas of Ghana ease access, despite implementation challenges (12,15). Also, although health workers are willing (27), they are discouraged by poor working conditions like low remuneration, stigmatization of their profession, and a lack of risk protection policies (19,27,39). Furthermore, there are frequent medication shortages (12,15,27,29,39) and inadequate supervision of mental health professionals (12,19). A study in Ghana reported low stakeholder interest in task-shifting policies (12), but in Sierra Leone, stakeholder partnerships have fostered decentralized mental healthcare (39).
Contextual factors
Social norms
Nine papers discussed how social norms may hinder access to mental health care (5,9,15,19,27,28,35,40,42). Social norms such as stigmatization, social condemnation, maltreatment, discrimination, and isolation hinder access to mental health care. Stigma, which is a major barrier across West Africa (15,42), is deeply rooted in the negative societal conceptualization of mental illness (28,35), and is seen in the use of local stigmatizing idioms such as “crazy” (9,27) and avoidance of patients and their families (5,19). Aside from this, not only do people believe mentally ill people should be isolated (40), but some are maltreated by being chained, beaten, or denied jobs (27). Also, the social condemnation associated with seeking primary care for mental illness, and the tendency for society to arbitrarily link mental disorders to substance abuse and moral decadence deter help-seeking (9,28).
Cultural beliefs
Ten papers talked about cultural beliefs (5,15,19,27–31,36,39). Cultural conceptualization of mental illness and beliefs about its causes and treatment influence access to the required care. Culturally derived categorization of illnesses into ‘bodily’ and ‘spiritual’ ones hinder access since mental illnesses are considered spiritual (29). Illnesses such as Schizophrenia are considered ‘strange’ (28), thereby encouraging people to seek care from informal sectors (15). Beliefs that attribute mental illnesses to witchcraft, bad wind, and evil spirits also serve as barriers (5,19,27,30,31,36,39). In effect, these beliefs propose that biomedical treatment is usually ineffective for mental illnesses (30,31). In Ghana, the Twi word for healing is “ayaresa” which literally means to “stop” or “cut off” pain or illness, a concept that might not always agree with biomedical treatment approaches (29).
Traditions
Only one study talked about the role of traditions in hindering access to mental health care services (9). This study in Burkina Faso by Pigeon-Gagné et al. (9), revealed that it is customary for mental illnesses to be treated by traditional healers. In keeping with ancestry practices, traditional medicine may include mixtures of herbs, certain rituals, and communication between healers and ancestors. Despite the emphasis on its effectiveness, many patients who use the traditional approach eventually end up in formal mental health facilities (9).
Socioeconomic status
Five papers talked about the role of socioeconomic status in accessing mental health care (7,36,41,43,44). The factors under this theme include employment status, educational level, and marital status. Skilled employment, self-employment, and working in the health profession enhance access to formal mental health care (36,43,44), but unemployment hinders access to care (43). Furthermore, people with higher education are more likely to access mental health care as compared to less educated people (7,41,44). Moreover, one study in Ghana reported that people with higher education participate more actively in shared treatment plans (7).