Social media platforms have redefined and transformed how we communicate emotions—particularly expressions of grief and distress in daily life. Interpreting expressions of grief and everyday stressors is challenging, and further complicated when considering potential bias associated with deciphering African American English and short-form textual expressions popular across social media platforms. To address these challenges, we assembled an interdisciplinary research team composed of social work scientists, computer scientists, and linguists, to develop the IESO platform and to collect and analyze posts related to grief and everyday stressors. We used qualitative and computational methods to interpret users’ posts, validating emerging themes using topic modeling. This approach enables a clearer understanding of how Black people in New York City express experiences of grief and everyday stress on a digital platform within the broader context of societal stressors like COVID-19, systemic injustice, and police violence.
Ongoing stressors, such as school or a recent romantic break-up, bring an additional burden to the bereavement process. These stressors may reduce the ability to seek effective social support and resources, increasing the likelihood of mental health complications and physical manifestations of grief (e.g. inability to sleep). The grief literature defines adaptive grief as including “gratifying, uplifting, and/or pleasant responses as well as distressful, disheartening, and/or painful ones,” where “integrating internal and external changes catalyzed by a grief-inducing loss is essential” (Darian, 2014, p. 200). Several IESO users embodied adaptive grief, such as naming gratitude for knowing the person they lost, and working through how to memorialize and make meaning of a loss. Other less-studied and non-traditional forms of grief were prevalent amongst IESO posts, among them miscarriages; the loss of pets, opportunities, and relationships; and anticipatory ecological grief, or “the grief felt in relation to…anticipated ecological losses” and the resulting consequences (Cunsolo & Ellis, 2018, p. 275).
Many users highlighted feelings of loneliness and desire for a supportive community, exacerbated by isolation as result of the COVID-19 pandemic (Lee et al., 2020). The prevalence of disconnectedness, masking emotions, and sense of isolation throughout the posts – in conjunction all posts were written during COVID-19 – suggests that social isolation from COVID contributed to increased feelings of psychological distress (Knox et al., 2022). Conversely, some IESO users felt supported, expressing gratitude for their families and friends, and emphasized the importance of practicing self-care routines. Qualitative and quantitative findings indicated the prevalence of both distress and joy among IESO users’ posts.
IESO does not share the volatility of other social media platforms: Users know fewer of their followers personally and thus the risk for unwarranted comments from people in their social circles is lower (Ma, et al., 2016). Social media platforms like Facebook, Twitter, and Instagram, are not inherently anonymous, and there is often a significant overlap of online followers and offline social circles (Correa, et al., 2021). Users may not want to share content conveying intimate feelings of grief or distress that close family members and friends likely see (Mondal, et al., 2020). IESO provided anonymity to unmask true feelings.
IESO data and themes present mental health clinicians an opportunity to consider integrating patients’ online description of grief and other triggering emotional events into more traditional treatment methods. Our findings highlight how Black users’ experiences of grief and ongoing stress could inform adaptation of current treatments for grief and stress. Findings offer an inroad of understanding into how Black community expressions of grief appear online, providing benefit to both social work and counseling practitioners, as well as those using computational methods to understand Black communities.
3.1 Limitations
Our study has limitations in both the qualitative approaches and topic modeling. From a qualitative perspective, IESO was created to conduct research and maintain poster anonymity. As such, replicability is limited to sites and/or platforms that can replicate those same conditions. Further, our definitions of grief and distress, while informed by the corpus of grief literature, may not fully incorporate a diverse understanding of experiences of grief and stress; as such findings cannot be generalized to groups outside the study populations. As stated earlier, post anonymity may have contributed to users feeling free to more openly discuss emotions or topics they would keep confidential on non-anonymized social media platforms, such as Facebook or Twitter (Nitschinsk, et al., 2023).
Additionally, topic models are often difficult to interpret in isolation, because the surfaced topics are represented as lists of key-terms. To mitigate this limitation, we considered topics alongside manually identified themes, and analyzed documents representative of each topic to provide context. As is traditional, we omit stopwords and encode the text by the most frequent terms. These preprocessing steps, however, are intended for mainstream English and may not be suited to handling features of African American English or specific social media conventions. Future work may focus on adapting topic modeling and data preprocessing approaches to the varieties of language represented in IESO specifically and social media more broadly. Experimentation with different topic modeling techniques is limited, and other approaches may surface higher quality topics. For an initial analysis to complement identified themes, we focus on more traditional methods fitted from scratch on the IESO posts.
A particular strength of the IESO platform is its moderation by social work students, who monitored for content that may trigger other users, including harmful or violent language, to ensure a space where users felt solidarity with limited emotional risk. By doing so, IESO moderators were able to control what users encountered, and to provide resources and information for users who expressed potentially harmful sentiments, such as self-harm. The moderation (or lack thereof) of other social media platforms is particularly why further research would need to be conducted on a platform designed specifically for users to post about distress and emotions on an online forum that is 1) anonymous and 2) moderated to keep potentially triggering or harmful posts away from other users of the site.