With the increasing prevalence of stroke and survival rate, there is greater emphasis on home-based support following discharge. Organising this form of care may however be challenging considering the often-significant emphasis placed on hospital-based care for stroke survivors. Meanwhile, the transitional follow-up activities are often referred as a “black box”, as they involve a complex set of interventions with many unknown elements [17]. The current study follows on from implementing a home-based comprehensive care program for stroke survivors as they transition from the hospital to the home/ community. With the use of the Omaha System, the problems that commonly emerge during the transitioning period have been identified, including concerns regarding neuro-musculo-skeletal, circulation, and nutrition. The Omaha System's structured approach not only provides a comprehensive framework to help identify issues that maybe of concerns, but also enables the proposal of targeted intervention domains. Among the four problem domains, Physiological domain had the highest prevalence and correspondingly among the four Intervention Schemes, “Surveillance” and “Teaching, Guidance and Counseling” occupied the highest counts of the nursing interventions. Put together, the evolving nature of the post-stroke recovery suggests a great need for ongoing aftercare support as the survivor transitions to the home. Also, the findings highlight the usefulness of the Omaha System in underpinning a potential comprehensive program of care for stroke survivors and their families supported by nurse follow-up.
Although several health problems were identified, the top three recurring needs during the transitioning period were identified in the physiological domain in the areas of neuro-musculo-skeletal, circulation, and nutrition. The key health issues identified are consistent with the physiological challenges typically associated with post-stroke recovery. Undoubtedly, stroke affects the neurological system and as such, deficits emerging from this part are likely to be pronounced as the individual recovers. Similarly, previous studies have highlighted higher rates of disabilities in the areas of cognition, muscle weakness, and spasticity among stroke survivors [18,19]. Although a physiological concern, neuro-musculo-skeletal deficits are likely to impact an individual sense of self and self-image. As noted in a recent qualitative study examining the experiences of first time Chinese stroke survivors, the notion of “shaken sense of self and perceived helplessness” resonated across the data which was associated with the neurological deficits [20]. Further to this, existing evidence also suggests that persons recovering from a stroke may experience reduced blood flow and decreased arterial diameter in the hemiparetic limb, thus, highlighting a concern regarding circulation [21]. In the absence of adequate support, the arterial changes can exercise performance and functional ambulation. Concerns regarding nutrition may also be evident due to issues such as oropharyngeal dysphagia which if unresolved, can lead to nutritional issue following stroke survival [22]. Though these triad of physiological needs may be apparent in the acute phase of care, their presence during the transitioning period may suggest their protracted nature affirming a great need for continuing aftercare or comprehensive rehabilitative support as the stroke survivor transitions to the home/ community. Apart from the triad of concerns noted above, other needs were identified across physiological, psychosocial, and health-related behaviour domains of the Omaha System. Although the intensity of these needs was not captured in the current study, the plethora of complex needs warrants a comprehensive aftercare programme such as the one previously implemented by the research team to support stroke survivors [16].
In response to these complex needs, although “Surveillance” and “Teaching, Guidance, and Counseling” emerged as the most utilised schemes, there were instances of “Case Management” and “Treatments and Procedures”. “Case Management” was mostly employed to address issues regarding medication regimen and healthcare supervision. Valuable nursing interventions are crucial for stroke survivors during the transition from hospital to home, primarily preventing serious adverse patient outcomes by monitoring for subtle changes. In the currently study, “Surveillance” accounted for 54.6% of the interventions, aligning closely with previous nurse-led transitional care programs that ranged from 50% to 68% [23,24]. For mental health specifically, surveillance was identified as a key intervention during this transition phase. In China, the willingness of patients to seek mental health support is often hindered by the associated stigma [25], thereby limiting the application of other types of nursing interventions. High-quality transitional care is characterized by effective patient education and counselling, where nurses significantly contribute to teaching, guidance, and counselling. These efforts are directed towards optimising functional recovery and fostering behavior changes that enhance patient outcomes, particularly in relation to exercise and diet. Given that a diet high in sodium is a more significant risk factor for ischemic stroke in China compare to countries with high socio-demographic index [26], alongside smoking being an undeniable risk factor for stroke [2], dietary management and smoke cessation are pivotal interventions for stroke survivors in transition. Due to the lack of prescribing authority, nurses in the current study primarily utilised behavioral modifications to address substance use. Put together, these findings may suggest a multidisciplinary approach to organising and implementing aftercare support for stroke survivors [27].
Additionally, the current study emphasises the potential usefulness of the Omaha System in underpinning a potential program of aftercare support for stroke survivors. The system’s ability to support home-based or community care among patients with varying medical conditions and to facilitate multidisciplinary interaction has been reported to be useful [28]. The study provided revealing insights into the key issues faced by stroke patients during transition, coupled with the utility of the Omaha System in capturing and addressing these issues, laying the foundation for development of a comprehensive aftercare program that can be supported by information systems to ensure a structured treatment plan. This approach is essential for providing the ongoing aftercare support necessary for stroke survivors as they navigate the complex journey from hospital to home. This integration not only aids in the efficient allocation of nursing resources but also contributes to the overall improvement of patient care and satisfaction.
Despite the interesting findings observed in this study, some limitations are noteworthy. Firstly, the transitioning period focused on the first 12 weeks following discharge. Thus, how the complex needs evolve and vary in the long term remains yet to be articulated. That said, it is possible the needs identified in this study can offer a view into what may be expected in the long term. Secondly, the current study focused only on the stroke survivors. Although the Omaha System has the capacity to identify family concerns, this was not captured in the current study. Future studies may therefore need to consider exploring the family concerns as well to attain a more comprehensive understanding of both family and survivor needs.