Liver transplantation can save the lives of children with devastating diseases
but challenges remain, and varying outcomes can affect patients’ lives
Standardization and transparency are difficult to achieve, and new developments are implemented slowly
Optimizing treatment strategies for pediatric transplant goes beyond traditional research -
it requires collaboration between clinicians and families and the utilization of improvement strategies
This need is addressed by the Starzl Network for Excellence in Pediatric Transplantation, or SNEPT
We are a learning health network aligning clinical care specialists, technology experts, patients, families, and patient advocates
The inaugural SNEPT meeting in 2018 brought together key stakeholders in the pediatric liver transplant community
to identify key challenges and set goals for improving pediatric transplantation outcomes
SNEPT leadership consists of transplant professionals and parent leaders from the SNEPT Patient & Family Voice group
Learn more about the Starzl Network and our 2nd Annual Meeting at StarzlTransplantNetwork.com
Follow the Starzl Network on Twitter @StarzlT and Instagram @StarzlNetwork
Squires et al. "A Learning Health Network for Pediatric Liver Transplantation: Inaugural Meeting Report from the Starzl Network for Excellence in Pediatric Transplantation" Pediatric Transplantation (2019)