Participants
A total of 27 clinicians and 15 HCMs were invited to participate; all clinicians and 60% of HCMs agreed to participate. The clinicians were distributed across six weight management services. Dietitians represented the largest number (33%), followed by pediatricians (19%) and psychologists (19%). Others who participated included nurses (15%), physiotherapists (7%), exercise physiologists (4%) and medical fellows (4%). The majority were female (78%). The clinicians had a broad range of experience, with the median years practising as a clinician of 14 years (range: 1-38 years). The clinicians had worked with children with obesity for a median of 4 years (range: 0.5-26 years).
The six weight management services had a variety of service models, ranging from a dietitian-led secondary level service to multi-disciplinary tertiary weight management services (Table 1). Two of the services only provided individual appointments with patients, three services provided a combination of group and individual sessions and one provided education in a group format only.
Stage 1 Questionnaire
- Management strategies
Clinicians used a range of general management strategies. The most common advice given to families was related to physical activity, screen time and water (Table 2). The type of nutritional management strategies used varied, with clinicians tending to provide general healthy eating advice, in contrast to a specific diet approach. Almost 50% of clinicians frequently provided advice on intuitive/mindful eating [26] and a quarter reported always using a non-diet approach [27]. A large number of clinicians (80%) reported using behavior modification techniques as part of their practice, although these were not specifically defined.
The most common type of dietary intervention was specific advice around reducing energy intake, with almost 80% of clinicians reporting that they frequently provided this type of dietary advice (Table 2). Almost one half regularly provided a specific meal plan to families. A total of 92% of clinicians reported that the most common reasons for choosing a specific dietary approach were patient preference and published research, with the least common reason being based on referral request (44% of clinicians).
- Training
The majority of clinicians reported that they had adequate training to manage children with obesity, although just under half (48%) felt that they could achieve successful outcomes (Table 2). Just over half of the clinicians indicated they had training in managing the co-morbidities seen in children with obesity. All of the medical practitioners and 75% of the nurses reported adequate training in managing children with obesity. In contrast, only 33% of allied health practitioners reported training. Sources of training included specialist training, online training modules and conferences.
- Outcome measures
The majority of clinicians (80%) used BMI percentiles as a measure of patient outcomes (Figure 1), with the clinical psychologists not doing so. Clinicians also commonly assessed other outcomes to track progress, such as the patient’s physical activity levels, screen time and sleep quality. The frequency of these assessments did not differ between patient age groups. Clinicians were least likely to assess patient’s depression scores or assess a patient’s metabolic profile, although this was often done by at least one clinician at each site. None reported using triceps skinfold or mid upper arm circumference.
- Burnout
Overall, the clinicians working in pediatric weight management services had low levels of burnout. The participants in this study reported low levels of emotional exhaustion (mean=9) and depersonalisation (mean=2) and high levels of personal accomplishment (mean=23). At an individual level, all participants reported low emotional exhaustion and high personal accomplishment, though 11% of participants reported a medium level of depersonalisation.
Phase 2 Interviews/ Focus Groups
Focus groups were undertaken with clinicians at each pediatric weight management service. A total of 27 clinicians participated in the focus groups and nine HCMs participated in one-on-one telephone interviews.
- Service development
Each service was established quite differently (Table 3). Older clinics described their development as evolving slowly, with many iterations and varying resources. They described fronting many challenges as they evolved alongside the growing prevalence of childhood obesity and evidence-base in the literature. Newer clinics used the structure of more established services (n=4) to inform their own development. Many decisions were guided by pragmatic considerations. For example, one clinic started with a simpler model, adapting the service thereafter to local demand using available resources. Each clinic consulted the scientific literature at set-up, with the majority of clinics revisiting the scientific literature every 2-3 years and adjusting service models as the evidence changed. One clinic however noted that its service model did not prioritize available evidence to inform its clinic structure or design.
- Service structure and resources
The waiting list for each clinic varied greatly, from no wait at all, to up to 6 months before patients could start the program. Clinicians noted several barriers restricting patient accessibility to the clinic, including limited access via public transportation (n=3), difficulties finding parking or expensive parking (n=4), and inflexible clinic times (n=4). The need for culturally and linguistically diverse (CALD) services, such as an interpreter, varied across regions. Some clinicians reported rarely having CALD patients present to the service, while others encountered them frequently.
Despite a focus on anthropometry at all services, participants stated that their focus was on sustainable changes in behavior and lifestyle rather than weight. Importantly, all clinicians placed emphasis on processes, rather than outcome goals. Process goals included improvements in comorbidities or medical outcomes (n=2), behavioral and lifestyle changes (n=5), patient education/awareness of obesity (n=2) and overall patient and parent wellbeing (n=2) and were perceived as more discernible and achievable than outcome goals such as weight change. Only one clinic believed that expectations weren’t always clearly articulated to patients and could be better communicated at enrolment.
Routine patient data most commonly collected included weight (n=4), height (n=3), abdominal circumference (n=4) and blood pressure (n=3). Some clinics also regularly collected data on heart rate, cholesterol levels, medications and comorbidities, including behavioral and developmental diagnoses. Although not routinely done, for high risk patients attending the weight management services, clinicians organized blood collection (n=3) to assess indicators such as fasting glucose and insulin, iron studies, liver enzymes and C-peptide. Some clinics (n=3) also routinely measured the parents and/or siblings’ heights and weights to normalize the process for the child and to facilitate discussion with the family about their own health.
- Service strengths and enablers of current models
Clinicians noted many strengths of their services. These included having a multi-disciplinary team (n=5), group (n=4) and outdoor (n=2) sessions and taking a holistic approach to weight management (n=2). Less commonly implemented strengths included maintaining strong department and external links (n=1), offering the clinic in a non-hospital location (n=1) and using telehealth (n=1). HCMs saw pediatric weight management services as an essential component of care delivered by their hospital, particularly to prevent comorbidities and chronic disease in adulthood. HCMs (n=6) were also optimistic that funding would increase in the future, as the awareness of the importance of weight management in vulnerable groups was increasing, although one participant noted declining funds in the year prior.
HCMs noted several major strengths of current weight management services, including strong commitment, dedication and expertise from all clinic staff, as well as the hospital (n=4), whole family involvement in treatment (n=3), links to research centres, multi-disciplinary team approaches (n=3), an evidence-based program (n=2) and provision of a free service to families.
“[Treating obesity] needs someone with that passion and drive because it's not a quick fix. It has to have someone with that long-term view that we're going to keep going and we will get results”
- Service weaknesses and barriers of current models
Several factors were felt by clinicians to lead to lower engagement among families and poorer attendance (n=3). These included a lack of transport options (n=1) and parking (n=1), inflexible clinic times (n=2), inadequate funding/resources (n=4) and staffing deficits (n=3). Particular staffing deficits were noted in the areas of administrative support, exercise physiology and social work. According to clinicians, patients and families from culturally and linguistically diverse (CALD) backgrounds, also faced additional and unique challenges (n=3), including difficulty engaging with families, the inability to use interpreters in group sessions, a lack of culturally-appropriate resources and the unique needs of families from CALD populations
HCMs perceived barriers to the success of current models included limited program breadth meaning that not all affected children could be seen, a lack of recognition in parents that their child was above a healthy weight, the resource- and time-intensive nature of interventions, and low patient engagement.
“I think that patients and their families sometimes don't see [obesity] as a problem, or at least not as a medical problem, because it's kind of normal in a community to be overweight. So, any behavioral change…. is always going to be difficult”
One clinic attributed their poor attendance to inadequate follow-up as they divided their weekly clinic by younger and older age groups, meaning that patients were seen only once a fortnight. With clinics limited to just four locations in the state, HCMs noted that rural, regional and CALD patients faced additional barriers when accessing weight management services. In addition, two HCMs described a potential stigma associated with attending a weight management clinic.
“I even think that there's kind of a stigma attached to having children come to an acute facility because of their obesity… And probably it's kinder for that [family] to be [treated] in the community.”
The challenges HCMs described were felt by the majority to be perpetuated by a lack of funding and resources (n=7), especially for personnel, primarily dietitians, but also pediatricians, psychologists and exercise physiologists. Clinics that had dedicated clinicians, still had limited capacity as staff usually had to divide their time with other services. Insufficient resources also meant there was an inability to see all patients referred to the service, worsened by the lack of alternative services, or to continue care after discharge from the service.
- Health service perceptions of obesity and weight management
HCMs unanimously agreed that obesity in childhood is a pressing issue and “a high profile, significant priority”. Many noted the increasing awareness around the topic and the need to more proactively address weight management during childhood, given the future impact on individuals and on health system resources. There was less agreement among HCMs as to with whom the responsibility for pediatric weight management should lie. It was clear that primary, tertiary and community services all had a potential role to play. The majority of HCMs (n=6) endorsed an integrated, or shared care, approach between primary and specialist health services.
“If we don't have a seamless pathway between the different sectors of health, we will not maximize the benefit of this intensive and highly valued program that is offered.”
The HCMs (n=4) suggested that the treatment of children with overweight should lie with primary healthcare providers, while specialist or tertiary services should be reserved for the treatment of more severe obesity and its associated comorbidities. One HCM suggested that community services were preferable to hospitals for long-term weight management, given the difficulties patients may experience accessing hospitals. This difficulty in access could exacerbate poor attendance and discourage long term engagement. Some HCMs (n=3) reported only seeing children with severe obesity, or feeling forced to prioritize these children due to long waitlists, resulting in a potential gap in care for those with less severe obesity, and in preventative services. HCMs (n=4) generally agreed that improvements needed to be made in initial discussions with families about a referral for their child to weight management services. Most HCMs (6/9) endorsed the need for additional training for hospital staff, particularly regarding navigating difficult discussions around a child’s weight and weight-related health needs.
“[Patients] have to be the 95th percentile and above…to be able to gain this multi-disciplinary team input at the tertiary level….but what we have lagged significantly is access to these lower level services … looking at early detection, early intervention, early screening and identification.”
- Recommendations for models of care
The HCMs and clinicians had several concordant recommendations for an ideal model of care for future pediatric weight management clinics (Table 4). Some HCMs (n=3) and clinicians (n=2) suggested clinics run more frequently (i.e. at least weekly), with another form of contact (i.e. telephone, email or text message) in between, to promote maximal engagement. Most HCMs (n=4) and clinicians (n=3) endorsed a multi-disciplinary team, including a nurse, an occupational therapist, physiotherapist, social worker and a dedicated dietitian and psychologist. Both HCMs (n=4) and clinicians (n=2) discussed the importance of involving the whole family, for example by educating them and showing them how to cook affordable nutritional meals, particularly for families with low socioeconomic status. HCMs (n=2) and clinicians (n=3) also recommended a more integrated, or partnered, approach between services across the state. They recommended that each health district has its own service, with links to, and partnerships in, the community for prevention, intervention and follow-up.